Public Panel co-hosted by CanCOVID and Canada’s Chief Science Advisor’s Task Force on Post-COVID-19 Condition
Understanding the Lived Experience of Post-COVID-19 Condition (PCC) / Long-COVID
Moderators:
- Angela Cheung, MD, PhD, Canada Research Chair in Musculoskeletal and Postmenopausal Health, Professor, University of Toronto, Staff, General Internal Medicine, UHN, Director, Centre of Excellence in Skeletal Health Assessment (CESHA)
- Donald Vinh, MD, FRCPC, FACP, Associate Professor, McGill University, Scientist, Infectious Diseases and Immunity in Global Health Program, Centre for Translational Biology, McGill University Health Centre
Speakers Include:
- Anne Bhéreur, MD, CCMF(SP), FCMF, Clinical Assistant Professor, Université de Montréal, GMF-U Sacré-Coeur et Soins palliatifs – CIUSSS du Nord-de-l’Île-de-Montréal, Co-director / patient-partner – Axe de rétablissement – Réseau Québécois COVID-Pandémie (rqcp.ca)
- Carrie Anna McGinn, MSc, Patient Advocate / Patient Partner in Research – Long COVID and Other Complex Chronic Illnesses, Co-founder of “Covid Longue Québec Long Covid
- Susie Goulding, Founder, COVID Long-Haulers Canada, Lead LCK Representative for Canada, Long COVID Kids
- Cara Kaup, BScPT, Peer Support Co-Director, Executive Board, Long-COVID Physio, Pediatric Physical Therapist
- Hannah Wei, Long COVID Patient-Researcher, Co-Lead, Patient-Led Research Collaborative
- Jonah McGarva, Co-Founder, Long COVID Canada
- Adriana Patino, Long COVID Canada
- Manali Mukherjee, MSc, PhD, Assistant Professor, Medicine, Division of Respirology, McMaster University, Affiliate Scientist, The Research Institute of St. Joe’s Hamilton Firestone Institute for Respiratory Health
- Sarah Butson, MSc, Public Affairs and Policy Analyst, Canadian Lung Association
At this virtual meeting, we will hear the perspectives of people with lived experience of PCC, also known as Long-COVID, to help inform the development of a scientific roadmap to address the health and socioeconomic impacts of PCC in the Canadian context. The Task Force report is expected to be released this fall.
Guiding questions for this panel involve considerations related to addressing knowledge gaps, healthcare services, the broader social impacts, and support to improve the lived experience.
- What data is missing that, if available, would help better manage living with PCC?
- What are the challenges of living with PCC for individuals and families?
- How has living with PCC affected work, and related aspects?
- What supports are required to live with PCC? What needs to change – advice for decision-makers at national, provincial, and local levels?
